Dementia Apps and Games: How to Choose Wisely

App sɔrɔli ka bɔ ko “mɔgɔ kɔrɔw ye”, “hakili” walima “dementia” ye. Dɔw ka ɲɛ bɛ, dɔw bɛ waatigɛlɛ, sɔrɔ dɔw bɛ sɛbɛn walima sɛbɛn ka kɛlɛ. Nin kunnafoni bɛ kɛ aw ka ɲɛfɛ ye ka app bɛɛ ɲɛfɛ. An tɛ app wɛrɛw ka ɲɛfɔ wala ka ɲɛmɔgɔya kɛ.

Dementia app dɔ sugandi fɔlɔ, nɔ bɛ min ka makɔnɔ?

Aw ka makɔnɔ labɛn fɔlɔ. “Ma ka kalan” bɛ se ka kɛ fɛn caman ye, ani makɔnɔ dɔ ka ɲɛfɛ bɛ se ka gɛlɛya makɔnɔ wɛrɛ ye.

Sɛbɛn kɛlɛ ka “structured cognitive stimulation” dɔ ka fɛn caman bɛ kɛ jama kɔnɔ, ni ɲɛnɛ fɛ ka kalan ni kuma, kɛlɛ, dɔ ni dusu ye. Ka sɛbɛn ka ɲɛnɛ bɛ kɛ ko Cochrane review ka ɲɛfɛ dɔgɔ kosɛbɛ, ka ɲɛfɛ min bɛ yɛrɛ ka fɛn fɛ. Nin kalan ni app dɔ tɛ kelen ye, ka app dɔ kɛ kɛlɛ dɔ ye min bɛ kɛ jama kɔnɔ.

Mɔgɔ ka se ka app ni a ka fɛn bɛ se ka kɛ, o ɲɛnɛ cogo di?

Ka mɔgɔ ka kɛ ye ka ɲɛ, ka a tɔ kɔrɔ ka fɔ a ka “stage” ye. Mɔgɔ fila min bɛ “stage kelen” kɔnɔ, u ka ɲɛ, ka kɛlɛ, ka kuma, ni u ka dusu ka ɲɛfɛ ka don kalan ni ɲɛnɛ kɔnɔ ka yɛlɛma. Alzheimer’s Association ye ko, aw ka ɲɛ ka mɔgɔ ka kɛlɛ fɔlɔ ni a ka fɛn ka ɲɛfɛ ka dusu ye, ka kɛ ka ɲɛfɛ, ka tɛ ka ɲɛfɛ ka ɲɛ.

Ɲɛnɛ ka ɲɛfɛ:

• a bɛ kɛ ni sɛbɛn tɛ, a bɛ se ka don;
• a bɛ dusu, a bɛ kuma walima a bɛ ko dɔ fɔ;
• a tɛ dusu ka ɲɛ ni fili ye;
• a bɛ se ka bɔ ni waati bɛ se.

Ɲɛnɛ ka gɛlɛya:

• “Ne tɛ se” walima “nin ye fili ye” bɛ sɔrɔ ka tɛmɛ;
• a tɛ ɲɛ ka ɲɛ min bɛ kɛ;
• sɛgɛn, hakɛto walima a bɛ sɛgɛ ka ɲɛnɛ bɛ kɛ min ka fɛn;
• a bɛ se ka kɛ ni aw bɛ fɛn caman kɛ.

Sɛgɛn ye ɲɛnɛ ye, a tɛ ka ɲɛ ka kɛ. Ka mɔgɔ ka “ɔwɔ” ka fɔ ɲɛfɛ. App kɔfɛ ka fɛn sugandili, early-stage ani late-stage kalan dɔw bɛ sɔrɔ.

Ni app bɛ ɲɛfɛ, ni fɛn min bɛ kɛ, o bɛ se ka kɛ cogo di?

Ka ɲɛ ka kɛ ka sɛbɛn ka fɛn ni ɲɛ, ka sɛbɛn ni kuma, ani ka sɛbɛn ka sɛbɛn kɔrɔ. Ka fɛn ni ɲɛ, ani ka sɛbɛn ka ɲɛfɛ ka fɛn kɛnɛ, o bɛ ɲɛ.

Sɛbɛn ni wari ka kɛlɛ bɛ ka ɲɛfɛ ka dɔgɔ ka kɛ.

Ka app ka sɛbɛn cogo di?

Ka ɲɛ ka sɛbɛn min bɛ sɔrɔ, ani min bɛ bɔ, ani a bɛ se ka tiɲɛ wala ka. A ka kɛlɛ fɔlɔ:

1. Ka sɛbɛn ka kuma ɲɛ. Google Play ka Data safety ani App Store ka privacy information bɛ fɛn ye min app bɛ sɔrɔ ani bɔ. U fɛ ko kalan kɛlaw yɛrɛ bɛ o kuma, o tɛ kɛlɛ ka ɲɛfɛ ye, kɛlɛ fɔlɔ ye.
2. Ka ɲɛ a ka kɛ ni konti. Ni app bɛ kɛ sɛbɛn ni kalan tɛ, a tɛ ka don ka i tɔgɔ, email walima i ka sɛgɛn dɔn.
3. Ka ɲɛ ka sɔrɔ kɛ. Ni kalan bɛ kɛ ka location, kontakt, microphone walima i ka sɛbɛn bɛɛ dɔn, o ka fɛn ye wa? Fɛn min tɛ ka gɛlɛya, o ka tɔ.
4. Ka ɲɛ sɛbɛn ni tracking. Sɛbɛn kɛlɛ bɛ se ka kɛ ka kalan ka ɲɛfɛ kuma bɔ mɔgɔ wɛrɛw ma.
5. Ka ɲɛ foto bɔlen. Ni aw ka foto don, u bɛ kɔnɔ wa, walima u bɛ server la wa? I bɛ se ka u bɔ wa?
6. Ka ɲɛ ka bɔ. Privacy policy walima data summary kɔnɔ, ka ɲɛ ka data ani konti bɔ cogo di. App min ko data tɛ se ka bɔ, o ka ɲɛfɛ ka ɲɛfɛ, ni a bɛ foto walima dusu kuma ɲɛ.
7. Ka privacy policy ɲɛ ka ɲɛ ka fɔ ko, fɛn min sɔrɔli, ni o ka mun, ni a bɛ ɲɛ ka fɔ, ani mɔgɔ min bɛ a ye.

HIPAA bɛ kalan ka kuma dɔn wa?

Ɔwɔ tɛ, ko min bɛ mɔgɔ caman kɛ ka gɛlɛya. U Department of Health and Human Services ka kuma bɛ ko HIPAA bɛ kɛ kɔlɔsili, dɔnkilidaw, ani olu ka ɲɛmɔgɔw ye. A tɛ kuma caman kɔnɔ, mɔgɔ ka kalan min a yɛrɛ bɛ sɛbɛn, o tɛ HIPAA kɔnɔ, ni tuma tɛ ka kɛ kɔlɛ ka ɲɛmɔgɔ ka kalan ye. App ka kalan kɛ dementia ye, a bɛ kuma ka dusu ni ka ɲɛ, nka a bɛ se ka tɛ HIPAA kɔnɔ.

HIPAA tɛ min ka dɛmɛ, o bɛ dusu ka sɛbɛn cogo di?

Federal Trade Commission ka Health Breach Notification Rule bɛ kalan caman dɛmɛ. 2024 la FTC ka kɛlɛ kɔrɔfɛ ka ko o rule bɛ kɛ app ni fɛn wɛrɛw ye min HIPAA tɛ. “Breach” bɛ kɛ data min bɛ bɔ ni yɛrɛ ka mɔgɔ tɛ, o tɛ kɛ hack kelen ye, ani kompanieaw ka mɔgɔw ni FTC ka lakana. O ye dɛmɛ ye fɛn ka ɲɛ kɔfɛ, o tɛ ka kuma ko app bɛ sɛbɛn ɲɛfɛ kelen ye.

Ka ɲɛ ka sɛbɛn, a ka ɲɛfɛ cogo di?

Ka sɛbɛn kuma ɲɛ ni dusukun ka kɛlɛ, ani ka fɛn ka gɛlɛya ɲɛ fɔlɔ. Ka ɲɛ ka sɛbɛn min kɛ:

• Fɛn jumɛn ye min ka ɲɛ kɛ? Kalan kelen ka sɛbɛn tɛ ko kalan bɛɛ bɛ kɛ kelen ye.
• Mɔgɔ jumɛn ye min ka ɲɛ kɛ? Ɲɛnɛ min kɛ mɔgɔ dusu ye, o tɛ dementia ni mɔgɔ ye.
• Fɛn jumɛn ye min ka ɲɛ kɛ? Ka kalan ka kɛlɛ kɔnɔ ka ɲɛfɛ ye, o tɛ ka kɛlɛ ka kɛlɛ kɔnɔ, kuma, dusu walima mɔgɔ ka ɲɛfɛ ye.
• Sɛbɛn ka ɲɛ cogo di? Randomized controlled trial (RCT) bɛ mɔgɔ dɔ ye min bɛ kalan kɛ, ani mɔgɔ dɔ ye min tɛ. A ka ɲɛ ka kɛ, nka sɛbɛn kelen tɛ fili ye. Sɛbɛn caman ka ɲɛfɛ, mɔgɔ wɛrɛw min ka ɲɛ, o ka ɲɛ ka kɛ.
• A bɛ dementia kɔrɔfɔ wa? Ni sɛbɛn bɛ ɲɛfɛ dɔgɔ ko ka ɲɛ kɛ, o tɛ fili ko app bɛ dementia kɔrɔfɔ, ka a tiɲɛ, walima ka a dɔgɔ.

National Institute on Aging ka kuma min bɛ hakili kalan ka dɔn, o bɛ ko NIH ka sɛbɛn caman ka kalan, ani o bɛ ko aw ka hakili ka ɲɛfɛ ka kɛlɛ, ka kuma ko kalan dɔ bɛ hakili kɛnɛ. A bɛ ko sɛbɛn ka ɲɛnɛ bɛ kɛ ka dusu ni hakili ka kɛlɛ, o tɛ hakili kalan kɔnɔ min bɛ kɛ sɛbɛn kɔnɔ. Aw bɛ se ka kalan ka brain games ni dementia ka kɔrɔfɔ ka kuma ɲɛ.

Ni fɛn kɔrɔ ye min ye fɛn dɔ ye?

Januari 2016 la FTC ka kɛlɛ kɔrɔfɛ ka Lumosity, “brain training” program ka kɛlaw ni u ka kɛlɛ. FTC ko kompani ka kuma ko u ka kalan bɛ hakili ka tɔɔrɔ dɔgɔ, dementia ni Alzheimer’s ka kɔrɔfɔ, sɛbɛn ka ɲɛfɛ tɛ. Kompani ye wari 2 million dollar di, ani a ka sɛbɛn kɔrɔ ni sɛbɛn ka ɲɛfɛ ka don kɔfɛ. Nin ye kuma ye ko kuma ka sɛbɛn tɛ.

Ni kumaw min bɛ ɲɛfɛ?

Aw ka ɲɛ ni app walima dɔnkili bɛ fɔ ko:

• “bɛ dementia walima Alzheimer’s ka kɔrɔfɔ,” “bɛ a dɔgɔ,” “bɛ a tiɲɛ,” “bɛ a kɛ fɛn tɛ”;
• “clinically proven” ko, nka sɛbɛn tɔɔ tɛ, mɔgɔ min bɛ kɔnɔ, ani fɛn min ka ɲɛ tɛ;
• “brain age” walima hakili sukɔrɔ min bɛ ko mɔgɔ dusu bɛ;
• “bɛ hakili kɛnɛ,” “bɛ a ka fɛn kɛ,” “bɛ hakili kalan”;
• mɔgɔw ka kuma bɛ kɛ sɛbɛn ye.

Ni aw ma dɔn, a ka a ka dɔkitɔrɔ ka ɲɛ.

Golden Moments bɛ min ka fɛn ye?

Golden Moments ye kɛlɛ dɔ ye min bɛ kɛ jama kɔnɔ, a tɛ hakili sɛbɛn, a tɛ kɛlɛ, walima dɔkitɔrɔ ka kuma. An ka kalan, i ko Picture Pairs, Conversation Cards, Photo Pairs, Picture Bingo ani Calm Breathing, u bɛ kɛ dusu ni kuma ye. U tɛ dementia ka kɔrɔfɔ, a ka tɔɔrɔ, a ka dɔgɔ wala a ka suɲɛ ye, ani an tɛ hakili kalan ka fɛn fɔ.

An bɛ app dɔ bila fana, Golden Moments for iPhone, iPad and Android. A bɛ sɛbɛn ni tile caman ka mɔgɔ ka ɲɛfɛ, foto ka kalan ni aw ka foto min sugandi, ani foto pack min bɛ kɛ offline, konti tɛ, sɛbɛn tɛ, waatigɛlɛ tɛ, sukɔrɔ tɛ. Kunnafoni ka kɛ ye, o ka kuma ka kɛ: App Store ka privacy label bɛ kɛ “Data Not Collected” (English la), ani app privacy policy bɛ fɔ foto ka kɔrɔ min bɛ maro.

An bɛ fɛ ko aw ka an ɲɛ, aw kɛ ka an ɲɛ ka kɛ ka an dɔn. Aw ka nin kunnafoni ka ɲɛfɛ, aw ka an privacy page ani medical disclaimer ɲɛ, ani aw ka fɛn bɛɛ bɔ, an ka ko min bɛ ka mɔgɔ ka kalan ni a ka fɛn ma ka tɔ, o ko bɔ.

App kura ɲɛ cogo di?

Ka kɛlɛ kɛ ni mɔgɔ ye don kɛlɛ ka ɲɛ, ka ɲɛ ka fɛn min kɛ.

1. Ka a sɛgɛn fɔlɔ ni an tablet and phone setup guide, ka daminɛ ni ka ɲɛ nɔgɔn ka kɛlɛ.
2. Ka waati dɔgɔ kɛ, ka dusu, kuma ani hɛrɛ ɲɛ, ka kɛlɛ bɔ ni fɛn ɲɛ.
3. Ni kɛlɛ ka gɛlɛya kɛ, a bɔ, a ka tɛ ka kɛ ni a ka tɔgɔ ye.